Caroline was born in 1981. She has all of the main features of WAGR syndrome: she had Wilms tumor when she was 18 months old, she has aniridia, she has abnormal ovaries, and she has significant cognitive impairment. She also has chronic kidney disease, and many of the other health conditions associated with WAGR.
But Caroline is far more than just her diagnoses. Whether because of them or in spite of them, she has grown up to be an extraordinary woman. She lives semi-independently in a group home. She works part-time at a job she loves – as a prep chef in the formal dining room of a retirement community. She also volunteers three days a week at a local church, doing everything from office work to cooking and serving at luncheons. Her hobbies include music and films, and live theater. She is an avid bowler with Special Olympics, and has won an impressive number of medals. She also loves to knit, and has made hundreds of baby hats, which she donates to a charity for sick and premature infants called Threads of Love. She has many friends, and although she enjoys dating she’ll tell you she hasn’t met that “special someone” yet. She is a loving, giving, brave, creative, funny and fun-loving person, and it is my great honor and privilege to be her Mom.
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886